Posting Note: Full time NP position for help in primarily out patient management of single ventricle patients during the time period they have shunt dependent physiology, typically between stage 1 and stage 2 of planned surgical palliations, as well as keeping our site up to date on data entry and management for our participation in the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC). Duties include:
- Oversight of home monitoring data on all patients enrolled in our program discharged from the hospital.
- Provide direct phone access for outpatients enrolled in the program from 8AM to 5PM Monday through Friday.
- Contacting families for any breech in “Red Flag” criteria to troubleshoot clinical issues.
- Prior to initial hospital discharge- Educating families on the interstage home monitor program, goals for initial hospital discharge, and expectations for follow up visits and testing during the interstage period. Helping primary team assess discharge readiness.
- Provide continuity of care by following patients while hospitalized during re-admission in the interstage period along with the primary team
- Prenatal consultations as requested by fetal team
- Weekly or as needed clinic visits (in person or by zoom) in the outpatient clinic Monday through Friday with primary clinic time once weekly on Wednesday afternoon
- Keep current patient list up to date
- Running the weekly multidisciplinary meeting for current patient review (out patients and in patients)- reviewing current clinical status, recent testing, follow up plan, procedure or surgical timing plans and any other concerns for the team.
- Consenting patients for participation in and coordinating our site participation in NPC-QIC with RED CAP data entry. Participate in learning labs (webinars), enter patient data in RED CAP, attend twice yearly national meetings, help with quality improvement initiatives, and contact with parent liaisons.
- Periodic (1-2 times a year) educational lectures for fellows and 5th floor nursing staff regarding our program and patients, SV protocols and updates for recommendations of care management
- Planning and running our annual “graduation” event (once yearly)
- Engage in research projects for institutional data analysis and quality improvement as time and interest allows
Other duties currently include participation in the Fontan clinic and in patient neurodevelopmental rounds
This position works in collaboration with the attending physicians and works within their scope of practice to provide excellent clinical care for patients. Plays a critical role in the patient family medical team. Professional who may practice in hospital’s inpatient and/or outpatient setting.